

Training for Involvement: What PRPs Need to Thrive
Result sharing from the UK PRP Survey (8) Patient and Public Involvement (PPI) in research thrives when those involved feel equipped,...


Managing Fatigue in Inflammatory Arthritis: Practical Tips and Strategies
For many people with inflammatory arthritis, fatigue can be as debilitating as pain Living with inflammatory arthritis can feel like a...


Challenges to Research Involvement: What’s holding people Back?
Result sharing from the UK PRP Survey (7) How can we reduce the barriers that would enable more people to get involved in research? Our...


Recognising Value: Payment and Other Meaningful Rewards for Patient Research Partners
Result sharing from the UK PRP Survey (6) Ways to reward and remunerate PRPs Our recent Patient Research Partner (PRPs) e-survey gave a...


How Are PRPs Getting Involved? A glimpse into the evolving role of Patient Research Partners
Result sharing from the UK PRP Survey (5) Whether in-person or remote, PRPs are getting involved in a variety of activities The...


Monday Motivation: Pacing Yourself and Practising Self-Care
Good morning, everyone! As we kick off another week, it's important to remember the value of pacing yourself, especially if you're living...


Why do people get involved and stay involved in research?
Result sharing from the UK PRP Survey (4) What drives someone to become and continue as a patient research partner (PRP)? The UK PRP...


Spring Self-Care Tips
Don't you love seeing the blossom.. its a sure sign that nature is waking up and the warm sunshine will hopefully follow! As we welcome...


Where do people find opportunities to get involved in research?
Result sharing from the UK PRP Survey (3) When I asked patient research partners (PRPs) how they first found out about opportunities to...


Who Gets Involved in Research (part 2): Exploring Age and Involvement in Research
Result sharing from the UK PRP Survey (2) Patient and Public Involvement (PPI) plays a crucial role in shaping meaningful and impactful...







































