What a Weekend Doesn’t Look Like for Someone with PsA.. (or any other inflammatory arthritis!)
For many people, a weekend might mean: having a lie-in after a busy week, heading to the shops or doing household jobs, meeting mates for...
Goldilocks Pain Syndrome: The Struggle to Find “Just Right” Comfort in Inflammatory Arthritis
Mel discusses the daily battle to find comfort.... If you’re living with an inflammatory arthritis like Psoriatic Arthritis (PsA), you...
Anyone remember 'The Yuk'....? (Flare-Ups revisited)
What's changed since 2013? Flare-ups are periods when symptoms of inflammatory arthritis—such as pain, swelling, stiffness, and...
Wrapping Up the PRP Survey: What We’ve Learned—and What Comes Next
Result sharing from the UK PRP Survey (10) UK Rheumatology PRPs are finding their collective voice! Over nine previous result sharing...
The Impact of Involvement: What PRPs Say They're Gaining (and Where Gaps Remain)
Result sharing from the UK PRP Survey (9) One of the most powerful things about Patient and Public Involvement (PPI) is the impact it can...
Coping in a Heatwave: Staying Safe with Inflammatory Arthritis
Tips for staying well in warm weather As climate change leads to more frequent and intense heatwaves, people living with chronic...
Training for Involvement: What PRPs Need to Thrive
Result sharing from the UK PRP Survey (8) Patient and Public Involvement (PPI) in research thrives when those involved feel equipped,...
Managing Fatigue in Inflammatory Arthritis: Practical Tips and Strategies
For many people with inflammatory arthritis, fatigue can be as debilitating as pain Living with inflammatory arthritis can feel like a...
Challenges to Research Involvement: What’s holding people Back?
Result sharing from the UK PRP Survey (7) How can we reduce the barriers that would enable more people to get involved in research? Our...
Recognising Value: Payment and Other Meaningful Rewards for Patient Research Partners
Result sharing from the UK PRP Survey (6) Ways to reward and remunerate PRPs Our recent Patient Research Partner (PRPs) e-survey gave a...
