Want to get involved in research?

There are many ways to get engaged

Patient involvement in research and conferences is vital for shaping healthcare solutions. By sharing our insights, individuals like us can influence research priorities and ensure our voices are heard.

Scroll down to find one that interests you! ***

Status: OPEN

Status: OPEN

MOVE START Psoriasis Study

The University of Manchester has launched the MOVE SMART study to explore how lifestyle changes—like diet, exercise, and stress management—can support people living with psoriasis. This program combines medical insight with real-life experiences to better understand how these non-medication approaches may improve symptoms and wellbeing.

People with psoriasis are invited to get involved by joining the study and sharing their experiences.

Learn more via the study website or or email movesmart@manchester.ac.uk

iPROLEPSIS Study

Status: OPEN

The iProLEPSIS project aims to enhance early prevention, diagnosis, and treatment strategies for immune-mediated inflammatory diseases (IMIDs) by integrating advanced research and digital tools. By collaborating with patients, researchers, and healthcare professionals, the project seeks to improve long-term outcomes and quality of life. People can get involved by participating in research, sharing insights, or engaging with project updates. It's recruiting in Europe and across the UK in

1 NOC (Oxford)

2 Royal Free (London)

3 Belfast

4 Salisbury

5 St Georges (London)

6 Llandudno

7 Lothian

8 Wrexham

9 Lanarkshire

10 Torbay

Learn more about the initiative and ways to contribute: iProLEPSIS Project.

'STEPS' Workshop for people with Psoriasis

Status: OPEN

Dr Charlotte Gollins, Dermatology Registrar at the Royal United Hospital in Bath, is looking for volunteers to join a workshop that explores the 'STEPS' of change from one biologic to another in Psoriasis.

Some people with Psoriasis need treatment with drugs called ‘biologic/ targeted synthetic therapies’. The drugs are very effective but unfortunately, they can stop working for some patients who then need to switch to a different drug. Finding out why drugs stop working is the aim of this project.

If you are interested, please scan the QR code or email ppe@birdbath.org.uk

'SWITCH' Workshop

Status: Closed

Dr William Tillett is looking for volunteers to join a workshop that explores the 'SWITCH' from one biologic to another in Psoriatic Arthritis (PsA). About 50% of people with PsA need treatment with drugs called ‘biologic/ targeted synthetic therapies’. The drugs are very effective but unfortunately, they can stop working for some patients who then need to switch to a different drug Finding out why drugs stop working and how to get control of it again is a high priority to people living with PsA. Dr Tillett wants to know how people feel about changing drugs, what they want from a drug change, or what circumstances prompt health professionals to discuss a switch of drugs - what is important to patients and health professionals in the decision making process and if the benefits of switching are worthwhile.

If you are interested, please email ppe@birdbath.org.uk

Status: OPEN

'TULIPS' Study Workshops

Following an online survey for a study called 'TULIPS', the research team are now seeking people to take part in a workshop in November and December 2024, that aim to explore self-management support resources for people with Psoriatic Arthritis and identify where gaps exist. This will be an online discussion group hosted by Christine Silverthorne of UWE, Bristol and you will be offered a £25 thank you voucher for taking part.

If you are interested, please email chris.silverthorne@uwe.ac.uk to take part

Status: OPEN

'HPOS' Study

The HPOS study is a research project looking at how healthcare and health outcomes differ depending on where people live and their backgrounds, especially for those with long-term health conditions. The study wants to understand why some people have better or worse health experiences based on factors like income, where they live, and access to medical care. By working closely with patients as partners in the study, HPOS aims to gather insights that could lead to fairer healthcare policies and improve care for everyone.

For more information, visit HPOS Study at https://hpos.study

or listen to my podcast with Dr Oliver Fitzgerald here

Status: OPEN

Hand impairment VR research study

Help make Virtual Reality more accessible!

Virtual Reality (VR) is an amazing technology, but many devices require full hand mobility, leaving some people out. I’m helping researcher Lauren to find people for her study to explore that as part of her PhD and your insights could help make VR accessible for everyone! Individuals aged 16+ with mild to moderate upper limb motor impairments needed.

£20 Compensation, refreshments and travel expenses to Bath University (up to £30) are on offer.

Can you help Lauren? Scan the QR code or send an email to: LSP40@bath.ac.uk

'AI-RADS' Study Workshop

Status: Closed

Who gets damage from arthritis? How does damage happen? Who should have stronger treatment to prevent damage? These are all important questions!

Dr. Will Tillett is leading a research project called ‘AI-RADS,’ which aims to develop a way to automatically detect and understand damage in Psoriatic Arthritis. He invites you to join an online workshop discussion on Wednesday, November 6th, at 7 PM

NOW CLOSED.

Patient Research Partner (UK) Survey

Status: Closed

This is a PsA HQ patient-led e-survey that aims to explore the different experiences and needs of people with lived experience of rheumatic diseases in the UK, who are or who have participated in a range of research engagement and involvement activities as a Patient Research Partner (sometimes called 'Patient Expert' or similar). We are hoping for 100+ responses and will analyse and publish the results.

NOW CLOSED. Thank you to everyone who helped!

(result sharing will be in 2025 on the news page)

Be sure to bookmark this page and check back for more opportunities to get involved in research opportunities!